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i A site about a rare autoimmune disease

A small disease.
A vast library.

Eosinophilic fasciitis — listed in ICD-10 as M35.4 — is rare enough that most doctors will encounter it once in their career. We gather everything we know here. In plain language, ad-free.

/ facts
ICD-10 M35.4
First described Shulman, 1974
Frequency ~300 cases in literature
Type Autoimmune disease
Status Rare disease
Diagnostic delay > 6 mo
Male-to-female ratio 1 : 1
Median age at onset 44.5 yrs
RCT trials 0
Literature span 1974 — 2024
/ recently added

New content in the library.

Every article contains photos, charts, and information that are useful in the fight against M35.4.
/ for whom

Three audiences, one site.

The site serves patients first. It is designed so that a doctor or researcher can also read it.
I.

Patients

Freshly diagnosed, under treatment, in remission. Every text is written in a language you can use with your family.

Living with the disease →
II.

Doctors

A digest for the GP who meets M35.4 once in a career. What to notice, where to refer, what tests to order.

Clinical section →
III.

Institutions

Research collaboration, publications, contact with treating centers. We invite you to co-build this knowledge base.

Research and contact →
/ why this site

Because everything you are looking for should be in one place.

Most information about M35.4 consists of dry encyclopedic entries scattered across the Internet. On the other hand, the most useful ones, like scientific studies, are often not understandable enough for the average patient.

This site is meant to be the opposite – we are entirely dedicated to one disease. We translate complex articles into plain language. We analyze what might have been overlooked by others. And on top of that – you can take part in all this too. No ads, no cookies, no subscriptions.

/ author — patient with M35.4, junior dev, editor of this site